A fishing net hangs over the sparkling blue water of the Mediterranean Sea. And I wish I was there, kind of…
On a bad day, I’m curled up dangling meters above the waves. My arm is pressed and twisted against my chest. My legs aren’t going to take me where I want them to. And the rope of the net cuts into my face. I peer down at darkening water, the wind sways the net and I’m afraid of falling. I know I can’t move my body the way I want to.
On a good day, I relax as if I’m in a hammock and swing with the gentle breeze. I roll on to my belly and gaze down at the scene below. I can watch all the able-bodied people swimming in the sea. It is a pleasant scene and I enjoy watching people enjoy themselves.The sun warms my shoulders and the sea breeze tosses my hair and cools me.
On a sad day, I wish to be carried in this net. I am tired. If someone would grab the four corners of this net, pull them together and hoist me over their shoulder, I’d gladly go for the ride. I’d be pleased to have a rest. I get tired of dragging this body around.
Okay, so likening multiple sclerosis to a fishing net is kind of obvious and too easy. But I had to do it. The picture is too good to be true and part of me would love to be on the Amalfi coast gazing at the blue water. I wish I knew what kind of fish that net will catch.
words and photograph by me.